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Awareness Week 2008 Events |
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 Support Groups around the country are working with FMA UK to raise awareness through various means. Anything from broadcasting on community radio to organising a coffee morning and inviting the local MP along, as well as tombola's and having awareness stands in a shopping mall.
Awareness Week 2008 is between the 8th and 14th of September and in the following section you can check what's going on around the country. If you know of anything that should be added here then please let us know using this form.
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'Womans Hour' on Radio 4 features Fibromyalgia |
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 BBC Radio 4's Woman's Hour will be carrying out a piece on Fibromyalgia on Monday 8th September between 10am and 10.45am as part of FMA UK's Awareness Week.
 It will be featuring FMA UK Medical Advisory Board member Dr Ernest Choy, a consultant Rheumatologist and Director of Research and Development at King's College Hospital. It will also feature Janet Horton FMA UK trustee (you will also know her from the benefits helpline and the forum), and Barbara a sufferer.
Details are still subject to change and, from talking to the producer of the show, it sounds as if it will be a good piece on awareness week.
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Presentation of Declaration to European Commission |
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FMA UK has sent letters to ALL UK MEPs and MPs regarding the signing of a written Declaration on Fibromyalgia being presented by the European Network of Fibromyalgia Associations (ENFA) at the European Parliament. You will find a copy below.
However, as usual, far more notice will be taken of individual requests to MEPs than one letter from FMA UK so we really would appreciate everyone following this up by contacting the MEPs in your region asking them to support us and sign. We need around 380 signatures on the Declaration or it will NOT be presented to the European Parliament and it will go no further. We will then have missed a tremendous opportunity to raise the profile of fibromyalgia both in the UK and Europe.
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FMA UK will be attending Nursing in Practice conference |
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Taking place in London at the Business Design
Centre on Tuesday 23 and Wednesday 24 September 2008, these conferences are
designed specifically to meet the educational needs of primary
care staff such as community nurses, health visitors, practice and school
nurses. The programme features an impressive collection of speakers
delivering highly topical and relevant presentations.
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Sufferer Shares Her Story |
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Sally Russell from Dartford, a fibromyalgia sufferer, has shared her story to help raise awareness. Although only getting diagnosed with FM two years ago Sally thinks she may have had it since she was in a car accident when she was 17.
She has shared her story with Kent News in a bid to raise awareness in advance of Awareness Week. You can read the full article here.
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Appointment of Des Quinn as Trustee |
 The Trustees of FMA UK are delighted to announce that Des Quinn has accepted our invitation to join the Board of Trustees. We are sure that his energy and enthusiasm will help take the work of FMA UK forward.
Des started helping FMA UK in 2006 by taking on the development of our website from the tremendous job that trustee, Jean Turner, had done prior to that. Since then, he has designed and implemented a completely new website for FMA UK. With the addition of our forums to our website which have proved extremely popular, fibromyalgia sufferers from all over the UK and beyond are interacting as a virtual support group.
At the time of writing there are over 4,000 registered members on the forum and nearly a quarter of a million posts.
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