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European Medicines Agency - Medication Errors Workshop

We are pleased to inform you that the meeting report of the Medication errors workshop held at the EMA on 28 February – 1 March 2013 has now been published on the EMA website. Please see the link below: http://www.ema.europa.eu/docs/en_GB/document_library/Report/2013/05/WC500143163.pdf

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Getting to Grips with Fibromyalgia by Kate Dawson

Kate Dawson has contacted FMA UK with a link to blog she has created about how her mum deals with fibromyalgia.  She says:

The term multi-tasking was invented for my Mum. Granted it’s a slow start in the morning, but after a couple of mugs of Yorkshire Tea she’s like a whirling dervish. An average morning might involve mowing the lawn, throwing a casserole in the oven, doing a pile of ironing and checking her emails . Nothing that remarkable you might think for someone who has raised four kids and run a successful business – except she is in constant pain with a condition known as fibromyalgia.

To read more, visit Kate's blog here

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Study: How you cope with Fibromyalgia

The aim of the study is to explore the lived experiences of individuals with Fibromyalgia syndrome and identify whether they have implemented any strategies to optimize performance, and if so what these strategies are. Also to compare the findings to strategies recommended by Occupational Therapists when treating people with FMS.

The information will be collected by face to face interview in Sheffield. If you would like to take part please contact Shivani at This e-mail address is being protected from spambots. You need JavaScript enabled to view it

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Psychological factors in fibromyalgia

You are invited to complete an anonymous questionnaire about the relationship between psychological factors and adjustment to fibromyalgia, and how these might affect physical and psychological wellbeing.
For more information and to take part in the questionnaire please click on the link: https://www.surveymonkey.com/s/KNV2SRL
 

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International Awareness Day - Sunday 12 May 2013

Fibromyalgia Paisley & Inverclyde Network, Bridgwater Fibromyalgia, Derby Fibromyalgia and Chorley group have all been in touch with their events and activities 

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Gerry and Jean Crossley

Gerry and Jean have been stalwart members of the FMA UK team for so long it will certainly seem very strange not to have them alongside us, although rumour has it that although relinquishing official posts there will still be some volunteering!

Jean first started a local support group nearly 20 years ago and when Regional Co-ordinators were first suggested in 2001, she was one of the first to put her name forward.  While in post she has expanded the role significantly producing valuable information not only for the groups in her region but to share on a national basis.  She has organised regional conferences, which have run with military precision but still maintained a friendly atmosphere and provided the group leaders with much appreciated experiences.

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Natalies - Yorkshire Three Peaks Challenge

Natalie and the Yorkshire Three Peaks ChallengeI am 25, coming up for 26 in July and I was finally diagnosed in 2011 at the age of 23. It all started with headaches, which I still suffer with daily and aches in my arms and legs.

After numerous visits to my GP over a 7 year period and ongoing blood tests, the final link that pieced everything together was the fact that at the age of 16, I had keyhole surgery on my right knee after it had locked in position only to be straightened physically whilst on a lot of morphine and put in a splint. The keyhole surgery revealed that the wall around kneecap was inflamed. 

Once I was diagnosed, I was immediately put on Amitriptyline, unfortunately, I didn't stay on this for very long as I found it changed my moods 90% of the time and I went from being a happy go lucky person to a moody, irritable pain in the backside (excuse the pun), this lead me to believe in self medicating with the power of positive thinking.

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