Tot's Tale is a Treasure!
A great new book to help explain to your children about invisible illness and chronic pain.Have you ever found it difficult to talk to the children in your life about chronic pain?
Young children don't understand how it hurts when they want to be picked up, played together with and doing activities that can be painful. As an adult you can feel bad that you can't do things for these young ones on some days. Research shows that many caregivers and parents feel that they are burdening the children in their lives by talking to them about their pain. They are also having problems making such a hard concept understood even to adult loved ones.
If you do have children in your life, then you should consider this new book "Tot's Tale About The Clever Colour System" for children aged 2-7 although it is great for all ages!
June meets Patsy Kensit
Last week June got the opportunity to be presented to Patsy Kensit and managed to chat to her for quite some time about fibromyalgia. June sent me the two photographs that were taken when she was introduced to Patsy last Wednesday. I have attached them for you all to see, some of you may have already seem them on Face book.
June told me that Patsy was very interested in what she had to say and that she asked her a lot of questions about FM. The first photograph does show how attentive Patsy was to what June was telling her and the second one shows Patsy holding the FMA UK badge and ribbon on her jumper. June's comment was that she herself would not have pinned a badge onto a jumper of that calibre if she had been wearing it !!. The jumper was obviously a very expensive one. Patsy did say that she would try to remember to wear the badge on International Awareness Day, May 12th, so maybe someone or even everyone who is on twitter or face book could remind Patsey of this on May 12th.
Study of the Effects of Cranial Electrical Stimulation
A Randomized, Controlled, Double-Blind Pilot Study of the Effects of Cranial Electrical Stimulation on Activity in Brain Pain Processing Regions in Individuals with Fibromyalgia
http://www.explorejournal.com/article/S1550-8307(12)00216-9/fulltext#sec1
NHS - Shared Decision Making
Over the last couple of years, the concept of Shared Decision Making as a way to increase patient involvement and autonomy has become more popular across the NHS and has been gaining traction across a range of specialties and clinical professions.
Read more about Shared Decision Making here
Selsey & Manhood FM Support - Awards Ceremony
Teresa White shares the good news with us
Just to let you all know that the first Selsey Business Awards were held last night, all glitz and glamour, black tie and long frocks, in Selsey at Bunn Leisure. We had a great meal and then the awards for which Selsey and Manhood Fibromyalgia Support had been nominated.
Falkirk & District Support Group - Awareness Week 2012
Falkirk & District have sent in some images, taken in September 2012 during Awareness Week.
The group were featured in their local newspaper, The Falkirk Herald' in their 'Group of the Week' section, and also some of their members visited the Scottish Parliament - meeting their local MSP Michael Mathieson and getting to sit in the debating chamber
Read more: Falkirk & District Support Group - Awareness Week 2012
More Articles...
- Largest Genetic study of fibromylagia ever!
- Sad News of the passing of Christine Craggs-Hinton
- a fantastic cycle ride to raise awareness and funds for Fibromyalgia
- Shared Decision Making
- Improvement through exercise (especially in males) in Gloucester
- Solicitors win record breaking settlement for fibromyalgia sufferer
- FMA UK Head office to move to Scotland
- Fundraising Christmas Choir Concert - Rutland
- Fibromyalgia & Wellbeing Research
- Petition: Improvement of services & resources for chronic pain
- Could your DNA provide a clue to the reason for fibromyalgia?
- FMA UK Request for More Trustees
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