Patients Preferences matter- a recommended read from Sir Muir Gray
http://www.theinformationstandard.org/news/new-paper-kings-fund
Read more: Patients Preferences matter- a recommended read from Sir Muir Gray
Work Capability Assessment (WCA) 3rd Review
It is imperative that you respond to this if you have gone through the system. Consultation into reforms taking into account fluctuating conditions do not seem to be going well and it is only by ensuring that the facts reach the right people, there is any hope of the improvements needed for people with fibromyalgia.
Moaning on forums and Facebook is all very well but will not make the difference needed. When you respond it would be helpful if you could copy us in so that we can collate information when we are involved in these consultations.
Charity Flowers - help FMA UK when you buy flowers
For every order placed, Charity Flowers will donate 15% of the retail price to FMA UK. So, if you are planning on sending flowers this summer (or in the future) please check out their website on https://www.charityflowers.co.uk/index.php/ and remember to make FMA UK your chosen charity.
2012 FMA UK Grand Raffle
Its that time again, how would you like to win a week away in Malta in an apartment where you can decide how relaxed or how busy you want to be? Previous winners, Susan and Roy Minifey, certainly had a wonderful time. “My husband, who has FM, and I loved the whole experience and found it relaxing, we came home feeling completely chilled out. Thanks again for the opportunity of being your raffle winners.” said Susan.
We have added our tickets to our sales page and you can buy these online and if you can persuade friends and family to purchase any that would be a great way to help us increase our funds. Your tickets will be put into the draw and your numbers emailed to you.
Of course if you can sell even more by having the tickets to sell, please get in touch with the office and we’ll get them sent out to you. You can buy them here.
Chris runs Ultra Marathon for FMA UK
He looked as fresh at the end as he did starting we are very proud of his achievement. Chris raised over £1500.00 for FMA UK.
Well Done !
Jo Swims the Channel for Fibromyaliga
Jo is hoping that the weather will be good for her planned date - otherwise it will need to be postponed or worst case cancelled. However, she already has a back-up plan in place if her Channel Swim is cancelled - heading up to Scotland to swim Loch Lomond, which is the same distance (21 miles as the crow flies)
Untimely death of Ann Roberts
Dear Friends,
It is with sadness that I have to notify you of the untimely death of Ann Roberts. Those of you who have worked with FMA UK since the beginning of rationalisation in 2000 will remember that Ann along with her husband Melvin was one of the delegates at our inaugural meeting. She felt very strongly about the lack of support that some people with fibromyalgia received from their medical professional care team and worked constantly to make all of the medical professionals she came into contact with aware of the condition. Ann did this despite having to contend with other serious health issues, along with her fibromyalgia.
More Articles...
- Exploring the Impact of Patients Googling Symptoms
- Simon runs half marathon for fibromyalgia
- Dr Andrew Holman talks about Fibromyalgia
- Fibro Pain Map
- We need you to help fill out our survey
- Fun Day for Fibromyalgia, Wingham, Kent
- Waving for World Arthritis Day (12th October) - what’s involved?
- The British 10k powered by Nike+
- Managing Sick Leave in the Workplace for People with Chronic Pain
- Events Organised by ACOFIFA for International Day of Fibromyalgia
- Liam and Kieran Tough Mudder 2012!
- Aberdeen Support Group Celebrates 10th Birthday
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