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Children and Young People

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Your role is to teach the child to live successfully with this condition and to look after themselves. At the same time, you will have to watch that a younger child does not overdo physical activity and end up in bed for a week.

An older child should be allowed to judge what the physical costs are for their various activities. If staying up late, or going to a disco or football match causes more pain and fatigue, they will have to learn to budget their energy, so that they can make progress at school and still have some fun.

If you are the main carer, ask a friend or partner to take over while you spend time with other children in the family. You must avoid other children resenting the time you spend with their brother or sister.

Many support groups exist around the country but, unfortunately, there is no group specifically for children and young people. There will be people in these groups that may have had fibromyalgia since they were children and can relate the strategies they used to cope.

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