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RE-POST | What can fibromyalgia do? https://t.co/jj48YDPiZE

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June FaMily magazine section

Each month articles included in the Fibromyalgia Association section of the FaMily Magazine will be previewed on this site. If you like the look of what you see you can decide to purchase a year's subscription.

Illegal Pain Relief by Kathy Longley
The medicinal use of cannabis has shot back into the limelight following the conviction of three people with multiple sclerosis charged with conspiring to supply an illegal drug. The trio were involved in producing chocolate bars containing cannabis and supplying them to other sufferers with multiple sclerosis throughout the UK. To date they have sent out more than 20,000 bars. Cannabis is renowned for its relaxation properties and many people with chronic pain claim that it reduces muscle spasms, helps them rest and allows them to be more independent. Kate, who was diagnosed with fibromyalgia 4 1/2 years ago, is a regular user of cannabis, "I find I get much greater relief from it than I do from my painkillers," she says.... 

Pregnancy and Beyond-From Preconception Care to Postnatal Success With Midwife Denyse Moore
Tips to help you navigate through the screening and diagnostic odyssey- Part 1Is my baby (fetus) okay? This question is likely to cross every expectant parent's mind at least once during the pregnancy. For those with pre-existing medical conditions this worry can be magnified out of all proportion. There are many reassurances that pregnancy screening and diagnostic testing can provide. However, occasionally there are some questions that can never be completely answered until after your baby is born. The tests described here and in next month's column should be offered to you and your partner as an option, but it is your choice whether you go ahead with them.... Subscribe to FaMily Magazine to get more of theses articles

Disability Rights Commission: Creating an Alternative Future; The Product of the Disability Debate
Long term medical conditions, such as fibromyalgia, are classed as a disability. The problem is, for it to be included in these priorities and recommendations, we have to make sure the Disability Rights Commission understand this and then all the other bodies that have responsibilities for the implementations. As yet no fibromyalgia statistics have been collected by the NHS. It will be interesting to see if any changes and monitoring takes place and we will keep asking questions with this document as ammunition.... 

Can Botox injections help relieve pain? By Karen Webb
Karen Webb, from Birmingham, who has had the symptoms of fibromyalgia for most of her life, gave Botox injections a try to relieve her pain. "I was having acupuncture at the time and the idea of having Botox injections was suggested to me just before my wedding. The injections were to be in my buttocks and lower back and when the doctor first suggested it I thought he was being rather rude about my rear portion!... 

Finding Relaxation through Meditation by Annette Jones
I recently decided to attempt Yoga as well as Pilates at a place called Total Fitness. The teacher, Pam, was excellent and very well conversed in Eastern philosophy, including the practice of meditation. I had not meditated for many years and had forgotten how good it used to make me feel. With nothing to lose, I joined in with the rest of the class and really got back into the swing of things. Meditation and Yoga go very well together, although, just as equally, they can be practiced separately. I don't do Yoga every day, but I have developed my awareness of breathing, a major aspect of meditation, and practice this every day, sometimes morning and evening, but often whenever time allows. Why?... 

In the Spotlight with Janet Horton
When did you first get involved with FMA UK? In August 1993 I was given a provisional diagnosis of fibromyalgia and decided to contact the person who was trying to organise a national association. When the diagnosis was confirmed in November 1993 I started to work voluntarily for the association as Benefits Adviser under the umbrella of the Citizen's Advice Bureau and this post remains my current role. In 1997, when Bob Stewart took over as Chairman, I became the first of the new trustees.... 

Doctors Differ in Approaches Used in Treating Malady
The treatment for fibromyalgia varies according to the doctor administering it. Patients often wind up seeing a rheumatologist or a pain-management specialist, and the most common medical approach involves reducing the symptoms - widespread muscle or joint pain, weakness, burning sensations, extreme skin sensitivity and fevers - and increasing the patient's capacity for activity… 

Latest Research
A Combination of 6 Months of Treatment with Pyridostigmine and Triweekly Exercise Fails to Improve Insulin-Like Growth Factor-I Levels in Fibromyalgia, Despite Improvement in the Acute Growth Hormone Response to Exercise.  Effects of Topical O24 Essential Oils on Patients with Fibromyalgia Syndrome: A Randomized, Placebo Controlled Pilot Study. Accelerated Brain Gray Matter Loss in Fibromyalgia Patients: Premature Aging of the Brain? …and more 

National Fibromyalgia Association Epidemiological Study Results Released
The largest online survey gives “snapshot’ of over 3,000 fibromyalgia patients. Morning stiffness, fatigue, non-restorative sleep, pain, low back pain, concentration, and memory “fog” were among the most common problems reported by people with fibromyalgia (FM), according to the results of an internet survey conducted by the National Fibromyalgia Association (NFA) in which over 3,000 people with fibromyalgia responded in less than 3 days….

Soapbox: Into The 21st Century by Jeanne Hambleton
The Community Website Builder allows UK charities, non profit making organisations, volunteer led groups and organisations (Scouts, Guides, sports clubs, schools and others) to build and maintain their own website without charge…. 

The ACR Criteria for Fibromyalgia: The Good And The Bad by Clauw, Daniel J. MD
The American College of Rheumatology criteria have been both bad and good for fibromyalgia. When they were published in 1990, this is what we thought ibromyalgia was: chronic widespread pain and the 11 of 18 tender points…. 

‘The Clueless Factor’ with Life Coach Pam Wright
In this column I have always urged readers to:

  • Become informed about the condition
  • Learn more about your true self
  • Work on creating a good life balance
  • Take control by keeping records to explain your reality
  • Have a Fibro-speech ready at all times
  • Consider making positive changes to diet and lifestyle.
  • Take relaxation, fun and meditation seriously
  • Make every effort to keep moving
  • Be creative in everything you do 
  • So what is the ‘clueless factor’?
  • How can it help, particularly as it seems to be in direct conflict with my normal message?.... 
Subscribe to FaMily Magazine to get more of theses articles

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