October FaMily Magazine

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Fun awareness events have been happening all over the country this summer. Have a read about the exciting raft race in Portishead, radio shows in Burton-on-Trent and Helen Butcher taking a stand on the Fourth Plinth in Trafalgar Square with her fibro duck!

Also, read about new research into possible new drugs to treat FM called naltrexone and sodium oxybate, Kaye Lane gives us the low-down.

This is also a very special month for me as I’m getting married on 18th October!   It is all very exciting and I can’t wait to finally have some real sunshine in Egypt on Honeymoon!

Best wishes,
Kathy Longley (FMA UK Editor)

Raising Awareness on The Fourth Plinth by Helen Butcher
..This neatly leads on to my involvement in the One and Other project. This project is being organized by sculptor, Antony Gormley, who is inviting people of the UK to occupy the empty Fourth Plinth in Trafalgar Square in London, a space normally reserved for statues of Kings and Generals. Over the summer every hour, 24 hours a day, for 100 days without a break, a different person will make the Plinth their own and use the time on the plinth as they wish…….

Research into Naltrexone and Sodium Oxybate: Reports by Kaye Lane
Low dose Naltrexone appears to relieve fibromyalgia pain in Stanford pilot study.

A medication known as low-dose naltrexone (LDN) was recently tested for possible effective treatment for fibromyalgia by investigators in the Department of Anaesthesia, Division of Pain Management at Stanford University School of Medicine. Naltrexone has been used for many years to treat drug addiction. Given in small doses, such as 4.5 mg, it may help to reduce pain associated with Multiple Sclerosis and Crohn's disease as well as other inflammatory and autoimmune conditions. It is not yet…..

Black Country Group Going to Europe. Want to Join Us? By Sam Everiss
…. So, we are set to go to the European Parliament on the 16th June 2010, with each person getting €275 towards expenses. Mike has asked if anyone else from any other group would like to go because if they would then he can contact the relevant local MEP to arrange funding,….

The Portishead Raft Race by Julia McCouaig
The whole awareness idea was being discussed at a support group meeting in early 2009 led by our chairlady, Betty Farron, and we were asked to think of ways to let more people know, recognise and learn to understand fibromyalgia. Some while later I heard about the Portishead Raft Race to be held at the local Lake Grounds on 12th July and had a 'eureka' moment! But……. how do people with fibromyalgia build a raft when sometimes it's impossible to hold a cup of tea? Easy - I ask my hubby, who is an Army Staff Sergeant, if I can talk to his boss about it! I mean, what's the point of knowing soldiers if you can't ask to borrow their muscles…..

Steam and Sail - A brilliant day out!
On Wednsday 8th July, members of the South Gloucester FM group and their friends gathered at the Bitton Railway Station for the eagerly awaited excursion on a steam train followed by a leisurely trip on the river. We were in plenty of time to meet together in the garden of the Station Cafe or in the wonderfully converted railway carriage for a nice cuppa before we were ushered through the nostalgic ticket office to board our 'specially reserved' train carriage……

Events in Burton-on-Trent
The Burton-on-Trent group's latest awareness campaign saw their chair Jan Mayfield featured in the local newspaper, the Burton Mail, with pegs on her fingers, just to show others how it feels to experience the pain of fibromyalgia (that is if they are daft enough to put the pegs on their fingers to test it!)….

Ironman Beats The Odds
Chris Binks finished the Ironman Triathlon in Bolton on the 2nd August against all odds, completing the 2.4 mile swim, 112 mile bike ride and marathon to raise funds for fibromyalgia….

Bristol Biggest Bike Ride
Keith and Julie Farron successfully completed the Bristol Biggest Bike Ride of 38 miles, raising £385 plus £85 in gift aid, a total of £470 for FMA UK……

Open Garden in Winchester
On 28th June, Chris Reynolds (a member of the Winchester group) and her husband, Richard, successfully opened their garden,…..

Coventry Group in the Paper
The Coventry Group managed to get a piece in their local paper, the Telegraph Coventry, about fibromyalgia and the way it affects them. This lovely picture,….

My Fibro and Me by Sue Brown
My name is Sue Brown, I am 55 years of age and I have suffered from fibromyalgia for the last five and half years. I retired from my job working for Rotherham Borough Council in customer services at the end of March 2008 on ill health. I belong to the Rotherham FMA Group and have been attending….

Most Common Cause of Fatigue that is Missed or Misdiagnosed by Doctors by Dr. Mercola
Your adrenal glands are each no bigger than a walnut and weigh less than a grape, yet are responsible for one of the most important functions in your body: managing stress….

Resting During the Day
When you need to rest during the day, it may be tempting to slump down in front of the TV for an hour. This is fine for someone whose muscles don’t tire easily and can cope with being stretched or scrunched, but it is counter-productive for a person with fibromyalgia, making you feel just as weary and sore as beforehand….

Autumn and Winter Fashion for FM Sufferers
It’s that time again. Another fashion season is upon us – autumn/winter (although the weather has felt like this nearly all year!). I'm here to give my suggestions on this season's fashions from the perspective of practicality, comfort and suitability for people like myself, with a disability and body restrictions, but who still want to look up to date and fabulous…

Get Organised for It
What’s your favourite season of the year?  If your symptoms are affected by light, atmospheric pressure and weather, then you are likely to choose spring or summer, but autumn and winter make up half of the year so, based on the fact that our thoughts can influence how we feel, how can you approach the onset of the British winter in a positive way?

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