Research to design a digital tool for chronic pain
The History of Fibromyalgia
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Fibromyalgia Awareness
Please share our short video about fibromyalgia to raise more awareness of the condition.
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The Adventure of a Lifetime
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Fibromyalgia featured on BBC Morning Live
BBC Morning Live featured a good piece on fibromyalgia this morning. It featured Dr Punam speaking about the condition how it affects people, the difficulty in diagnosis and treatment options. Janette Manrara was the presenter and thought the subject was well covered. It had some additional impact as both Jannete and Dr Punam have personal expereince of the condition with their mothers suffering from the condition.
Dr Punam's reflection on the challenges that her mother expereinced many years ago as opposed to our awareness of the condition now was an important aspect. It can be found in iplayer for the next year or so at https://www.bbc.co.uk/iplayer/episode/m001q95f/morning-live-series-5-08092023 and the fibro piece starts at the 23:18 mark till the 28:46 mark.
Thanks to all that took part and helping to raise awareness especially during our awareness week.
Thank you to JManara and Dr Punam for their contribution to the programme. You can find the clip here
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Highlights
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- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
